Dr. Gielen was awarded the Faculty Development Fund Grant Award
Autonomy in Socio-culturally Diverse Advanced Cancer Care SettingsImproving Patient Involvement in Decision-Making
Principal investigator: Joris Gielen, Ph.D.
Co-investigators: Henk ten Have, MD, Ph.D., Joan Such Lockhart, RN, Ph.D., AOCN, FAAN Funded project Faculty Development Fund
Abstract: For people belonging to ethnic minorities living in the US, participation in medical decision-making may not always be obvious. Due to hierarchy within the family and socio-culturally determined attitudes to illness and health they may not be able to autonomously decide about their own treatment. This presents an important challenge to healthcare as lack of involvement in decision-making goes against the ethical standards of good medical practice; it can lead to treatment decisions which go against patients' wishes; and may in this way negatively impact quality of life. We will study how socio-cultural factors influence patient autonomy among elderly (60+) advanced cancer patients in Pennsylvania and more particularly in the Pittsburgh area. Given the increasing prominence of the Asian-Indian population in Pennsylvania we will focus on patients of South-Asian origin. We will conduct a qualitative study to determine and analyze the socio-cultural factors which impact decision-making; and we will undertake the first steps towards the development of a framework which will enable healthcare providers, particularly oncology and palliative care nurses to efficiently address them.
In April, Dr. ten Have delivered the School of Medicine Distinguished Lecture at Creighton University. The event was sponsored by Creighton University's Center for Health Policy and Ethics, the Department of Medicine, and the Health Sciences Continuing Education. Dr. ten Have's presentation was titled "Vulnerability: Challenges to bioethics in a global context." FOCUS-Spring 2014 published by Creighton University's Center for Health Policy and Ethics includes description of Dr. ten Have's visit and the event. Available here.
Prof. Henk ten Have gives the graduation speech at the Medical University of Pleven, Bulgaria
On April 7th, 2014, Prof. ten Have was invited to give the graduation speech at the Faculty of Public Health of the Medical University of Pleven, Bulgaria. Graduates were BA and MA students in nursing, midwifery, health management and ergotherapy programs. (Here is the news piece, in Bulgarian)
On April 8th, 2014, Prof. ten Have participated in the Day of Bioethics that was organized at the university. The day included plenary sessions and poster presentations.
Prof. Henk ten Have Speaks at an International Workshop in Hong Kong
Between December 3-5, 2013, prof Henk ten Have, the director of the center, was invited to speak at the Third International Bioethics, Multiculturalism and Religion Workshop and Conference. The workshop was hosted by Hong Kong Baptist University and co-organized by the UNESCO Chair in Bioethics and Human Rights. Experts from various religious backgrounds discussed the use of Human Rights in the context of bioethical discourse while considering the cultural and religious contexts of different communities. For more information on the program of the workshop, please follow this link. Here is a collection of pictures from the conference.
Duquesne Professor Invited to Set UNESCO's Bioethics Goals for Future
Dr. Henk ten Have, director of Duquesne University's Center for Healthcare Ethics, is among the internationally renowned bioethics specialists invited to discuss the achievements of the United Nation's Educational, Scientific and Cultural Organization (UNESCO) in bioethics over the last 20 years and to help establish the organization's role in the future.
The roundtable discussion on Friday, Sept. 6, in Paris commemorated the 20th anniversary of UNESCO's bioethics program and the creation of the International Bioethics Committee. The public session was webcasted live and simultaneously translated into the six working languages of UNESCO.
Ten Have is a former director of UNESCO's Division of Ethics of Science and Technology (2003-2010) and a founding member of the International Association for Education in Ethics.
"UNESCO has taken the leading role in the field of global bioethics developing a global framework of ethical principles for healthcare and health research," said ten Have. "The challenge ahead is to make sure that these principles will be applied in health policies to improve global care, protect vulnerable populations, reduce health inequalities and to warrant that really all people are benefitting from the progress of science and technology."
A Day Symposium Celebrating the Life and Work of EDMUND PELLEGRINO, M.D., M.A.C.P. in his 93rd Year
Prof. Henk ten Have was given the honor of speaking at the symposium on March 15th, 2013 at Georgetown University celebrating the Life and Work of Edmund Pellegrino, M.D., M.A.C.P. in his 93rd year.